Birthdays, emergency room miracles, and healthcare milestones

June 18, 2016. Stan and I were in Temple to celebrate my birthday, which had been on June 9 and Father’s Day, which was this Sunday. This weekend marked the return to our tradition of celebrating Father’s Day and my birthday at the same time. On my last birthday, Dad had been unable to swallow, let alone eat cake. His condition had remained unchanged for Stan’s birthday in July, Mom’s birthday in August, and his birthday in October. During that time, I had become resolute that when Dad could eat cake again, I would bake a cake that represented all of the missed birthdays. I envisioned a cake of four layers: a layer for each of us.

I’m partial to rum cake, Mom likes carrot cake, Dad likes chocolate, and Stan likes apple pie, so he would have to be happy with a reasonable cake alternative. To help expedite the process, I purchased four boxes of cake mix and pulled out the cake pans.

IMG_1878The finished cake sported numeral-shaped candles, each candle representing the second digit of our ages: 1, 2, 8, and 9. I had not considered the weights of the layers, and when I was finished, the cake resembled something that you might see in a Dr. Seuss book. I also hadn’t anticipated how much extra cake we’d have. Needless to say, we would not run out of dessert for quite some time. We all were able to enjoy our favorite day, and I was thankful that all four of us could eat cake.

July 1. Today was a big day for Dad. Dr. Jaffers had decided that the fistula was sufficiently cured and could now be used for hemodialysis. After more than 13 months of receiving dialysis via a tunneled hemodialysis catheter, today the catheter would be removed. He had had this catheter since September 29, 2016, just over nine months.

birthdayCross1Like many of the other procedures that Dad had had, this one would be simple and would be performed in the interventional radiology (IR) department by Dr. Dollar, the same interventional radiologist who placed the catheter in September.

The three of us arrived at the Interventional Radiology department at 12:30 P.M., and Dad was wheeled away in a gurney approximately 20 minutes later.

The nurse brought him back to the recovery area at 1:40 P.M. It seemed that the procedure had not been as simple as anticipated. Because the catheter had been in place for nine months, his body had sort of glommed on to it. As we left, the nurse told us that Dad would need to wear his dressing until Sunday afternoon, two days from now. If he showered before that time, he would need to protect the dressing with a shower shield. Once the dressing was removed, he could shower like a regular person. This news had been a long time coming and was like music to our ears, especially Dad’s.

IMG_1947After dinner, I asked Dad if he or Mom had checked his dressing since he had come home. Mom said that she hadn’t checked it, so we asked Dad to unbutton his shirt for us. The dressing was very bloody, and even Dad was concerned about the pool of blood that had collected. It was now after 7:00 P.M. on a Friday and holiday weekend. This was the second time that we had scheduled a simple procedure on a holiday weekend, which made me question our sanity.

We located the papers that the nurse gave Dad when he was discharged. I called the after-hours phone number and asked to speak with the on-call IR resident. After being connected to Dr. Jeffrey Rhea, he asked me a series of questions to help him decide our best course of action. I asked him if I could text him a photo of the dressing area. He liked that idea and at 7:30 P.M., I sent him the first photo. He called me and asked for another photo that included more of the clavicle area, which was the region of his primary concern.

birthdayCross4After reviewing both photos, he said that he didn’t see anything emergent and suggested that we stop by the IR clinic on Saturday after dialysis. As much as Dad hates the Scott & White emergency department, he, Mom, and I decided that he should get rid of the oversaturated dressing before tomorrow afternoon. I texted the doctor and told him that we were going to the emergency room. While en route to the hospital, he texted me as asked for our ETA. When we stopped at a signal, I responded that we were less than five minutes from the hospital.

At the hospital, I was thankful for Dad’s accessible parking placard because, except for the accessible parking spots, the parking lot was full. With me nervously holding on to the back of Dad’s shirt, he walked into the hospital on his own. As I had expected, the waiting room was packed. In the intake line, one person was ahead of us and speaking with the clerk. Off to the side, I noticed a woman telling a hospital employee that her daughter had arrived earlier in an ambulance and was in triage. She was late getting inside because it took her several minutes to find a parking space. When the person in front of us left, I held Dad back and told him that we would let the concerned mother go ahead of us. The slight delay would serve us well.

birthdayCross4When it was Dad’s turn, he explained to the clerk why he was there. When she finished questioning him and completing her paperwork, she told Dad to raise his arm so that she could fasten his ID tag around his wrist. At that moment, Dr. Rhea seemed to appear out of thin air, grabbed the ID bracelet, and said that he’d take care of us. He then told me and Dad, who was now in a wheelchair, to follow him to the end of the waiting room. We waited there while he gathered supplies from a couple of cabinets. As he was about to remove Dad’s dressing in the middle of the hallway, I reminded him that we were sitting in the middle of the main thoroughfare between the waiting room and the examination rooms. He acknowledged that the location might be problematic and had us move out of the waiting room, although we were still in a hallway. One of the ER nurses gave us a questioning look when she saw my father and all the blood from his dressing. I laughed and said, “Is this the OR?” She replied, “No, this is the ER.” Dr. Rhea quickly explained that he was just changing a dressing and would be out of the way in a few minutes.

When Dr. Rhea was finished, he wheeled Dad back to the waiting area and toward the entrance of the hospital. As we wheeled Dad to the parking lot, we thanked the resident doctor profusely. I’m fairly certain that our resident violated hospital protocol, but we appreciated his “git ‘er done” attitude. This trip to the hospital was truly an emergency room miracle: we completed the trip from home, to the hospital, and home again in less than an hour. When we got home, Dad was wide awake and was in the mood for a long game of Oh Hell, which he won. After a day like today, he deserved to win.

birthdayCross3For all intents and purposes, this surgery marked the official end to Dad’s health care odyssey—a mere 420 days after he entered the hospital for elective heart surgery. He would still need to gain some weight and strength, but he was now driving, attending church, and getting around my parents’ acre lot with little to no assistance from his cane, and he used his walker only when he went to dialysis. He had beaten the incredible odds against him and was a walking miracle.

As we looked back on the events of the past year, we acknowledged that there were a lot of couldas, wouldas, and shouldas, but we can’t change the past. We’d have to chalk up our experiences as lessons learned that we could share with others. As I had learned from my own experience with the hospital, it was easy to get sucked into the medical system and lose control of the situation and maybe even lose money. Having advocates and second opinions are vital for negotiating the healthcare industry.

 

The patients are doing better, but now the caregiver is down

June 1, 2016.  The headache that I woke up with yesterday had not subsided and woke me up at 12:51 A.M. I took more of Dad’s Extra Strength Tylenol and then vomited about 30 minutes later. The pain made it impossible to sleep and made me less than productive when I started working at 4:00 A.M. I attended one of my meetings but had to cancel the remainder of my meetings. At 7:00 A.M., I went back to bed.

fastCross1My husband suffers from migraines, but I very seldom get headaches, so Mom was very concerned. She called her doctor’s office to see if I could see the doctor today, but they didn’t have any openings. We didn’t want to go to the emergency department, so his nurse suggested that Mom take me to an urgent care center. The one closest to the house opened at 9:00 A.M., and we were waiting in the car when they unlocked the doors.

After a short wait, Mom accompanied me to the examination room. After the doctor asked me a few questions and had me walk across the room, he told me that he suspected that I was having a stroke. After the events of the past year, this diagnosis seemed like a bad dream, and I hated that my mother had to hear it. The doctor said that the only way to conclusively diagnose a stroke would be to go to Scott & White, the very place that I had been trying to avoid. Before I left, the doctor handed me a couple of prescriptions for back pain and the headache. Because I was headed for the hospital, I didn’t want to take the prescriptions, but after the doctor all but insisted that I take them, I put them in my purse. After having spent $125 at the urgent care center, we drove a couple of miles to the Scott & White Emergency Department (ED). Dad had a doctor’s appointment this morning, so I told Mom to drop me off at the door and then go home and take care of Dad. If I had learned nothing else this past year, it was that once you walk through the door of the emergency department, you’re there for a few hours.

ouchCross4Unbelievably, the waiting room was empty. Two nurses triaged me and took me right to an examination room. Although this might seem like standard operating procedure (SOP), in my experience with this ED, triage was followed by a lengthy wait in the waiting room. Business must be slow on Wednesday mornings. What was SOP was the blood draw and urinalysis, followed by an hour wait for the test results. While I was waiting, my mother was escorted to the examination room. She and Dad had decided to reschedule his appointment so that she could be with me.

During our wait, the primary ED physician stopped by to tell me that I was in good hands because the ED resident was a neurologist. To my horror, the resident then told me that she was going to order a spinal tap. At that point, I told her that when I had been at the urgent care center, the doctor suspected that I was having a stroke. She was confused by that diagnosis and asked me if I knew how he reached that diagnosis. I told her that I wasn’t sure, but he had been concerned that my walk had been a little disjointed and unsteady. After watching me walk, she was a little skeptical, but she ordered a chest x-ray and a CT scan of my head. After another wait, she ordered a CT scan of my lungs and an x-ray of my head. I could practically hear the bill growing.

fastStroke

May is Stroke Awareness Month. If I had had my wits about me, I would have challenged the diagnosis of the urgent-care doctor. I had no facial drooping or difficulty with speech, and he didn’t check the strength of my arms. Mom had had a stroke on May 15, 2015, so I should have known better.

fastDollarsAnd then the woman with the traveling laptop entered the room to resolve my bill. After handing her my insurance card, she told me that I had a very good insurance plan for emergency care. My bill had come to $6,000.00 (approximately $1,000/hour), but my out-of-pocket portion was only $2,000.00 (gag). She started to say that if I were to be admitted, there would be some other process, but stopped midsentence and said that I would be admitted. When I asked why, she said that the doctor would return soon and she would tell me. After all of these tests and the pending admittance to the hospital, I wondered what the heck was wrong with me. When the doctor returned, she said that she was admitting me because I had pneumonia. I had spent a lot of time with someone who had had pneumonia twice during the past year, and I was pretty certain that I didn’t have a single symptom that would warrant that diagnosis.

Although I had dodged the spinal tap by bringing up the urgent care diagnosis, I cringed when she said that they needed to draw more blood for a blood culture—one draw from each arm, and they could not use the IV as a source. The worst thing that I inherited from Dad was his veins: we’re both terrible sticks. I told the nurse that she would have a difficult time getting more blood from me. After poohpoohing me, she tried unsuccessfully to hit a vein in my right arm. She was about to try again when the resident returned, saying that they were not going to admit me. It seemed that I didn’t have pneumonia after all. She said that what they had thought was fluid in my lungs was my diaphragm. They realized their mistake when someone checked the CT scan of my chest.

fastCocktailThe good news was that they were going to give me a nice IV cocktail of concoctions that would make my headache go away. Although I was grateful to get rid of the pain, I was not convinced that it wouldn’t return after all of the good drugs wore off. When I asked her if she had any idea what caused the pain, all she said that she doubted my assertion that I didn’t get headaches, which was hugely annoying.

After an hour, the liter of fluid and the good stuff that it contained had drained into my veins.  I felt better and Mom took me home. Unfortunately, the good feeling wore off in about four hours.

I was the designated driver for our family-reunion trip to Midland on Friday, but Mom was now having second thoughts about the five-hour drive, and she suggested that we cancel our trip. I reluctantly canceled our hotel reservation and contacted one of my cousins to apprise her of our situation.

fastCross2June 2. Fortunately, I had the prescriptions from the urgent care center, which we filled after breakfast. Because my pain had started in my head and extended down my back, the urgent care doctor had prescribed one medication to address the backache and another for the headache.

The prescribed pills seemed to do the trick, but they left me feeling stupid and sleepy, which made working almost impossible. I spent most of the day napping.

2014_ 09cats_014
Peanut

June 3. Peanut, our female cat, had been ill and Stan had dropped her off at the vet’s office for some tests. I called the vet this morning to get the results. Unfortunately, the news was not good. Peanut’s WBC count was elevated 10x above normal for cats. He said that he was pretty certain that she had bone marrow cancer, and she might also have cancer in her liver. He said that he’d call me Sunday morning before church with another update. During all the terrible times during Dad’s hospitalization, I had cried only once, and then it was for another patient. Maybe it was because of how I was feeling, but this news about our sweet cat was the tipping point for me, and I could not suppress my tears.

fastCross2I quit taking the medication for my back, but I dipped into the headache meds as often as I could. I don’t know what prompted me to do it, but I pulled out Mom’s yoga mat and ran through some Pilates moves that have helped me in the past with back pain.  Before the day was over, I had run through the routine two more times.

Because I had originally planned to be in Midland today, Stan had arrived last night so that he could spend the weekend with Dad. Although our family reunion plans were canceled for Mom and me, I was glad that Stan was here for me.

June 4. Stan relieved Mom today and took Dad to dialysis. He also picked him up at the end of his session, and the two guys ran some errands and retrieved Dad’s lawn mower from the repair shop.

annivCross1While Stan and Dad spent the day on outdoor activities, I kept running through my Pilates routines and noticed that my headache and back pain had diminished significantly.

June 5. Note to self: the next time that I get a screaming headache and backache, try Pilates before seeking medical assistance. I had had some back problems in the past, but they had never started with a headache. Exercise and stretching were now my first option. When Mom and I went to church this morning, both my back and head were pain-free.

Now Mom, Dad, and I had all experienced the Scott & White Emergency Department. When I went to see my doctor in Houston a week later (as advised by the ED resident), she shook her head, rolled her eyes, and asked: “what kind of medicine are they practicing up there?” I had had the same thought.

 

From flying monkeys to angels

November 25, 2015. After not getting to bed until 2:00 A.M., the morning seemed to come very soon. I had worked for about an hour when I heard Dad and Michell waking up at 6:00 A.M. I took a break from work to administer Dad’s meds and trach care. My plan had been to work half days this week and then bake for the remainder of the day.

I was worried about the events from the previous night, so at 8:00 A.M., I called the Bell county sheriff’s office to see who had requested our visit from Deputy Blankemeier. After a couple of minutes, a very pleasant woman at the sheriff’s office told me that Adult Protective Services (APS) had placed the call. As I hung up the phone, I called for my mother to tell her what I had learned and that I was fairly certain that we were up the proverbial creek.

flyingMonkeyOnly a few minutes later the phone rang, and it was Tracy, our nurse. Instead of calling to see what time she could stop by, she was calling to tell me that because we signed the AMA last night, Dad had been discharged from Home Care and that all of the appointments for the day were canceled. I felt physically ill, and it seemed as if my peripheral vision was closing in. Being discharged from home care meant that Medicare would no longer be paying for all of the equipment in our house and that all of Dad’s therapies would cease. The financial and health implications were enormous, and I felt guilty for putting us in this position. I should not have taken Dad to the hospital, regardless of what Dr. Pfanner’s nurse had said. I asked Tracy how we could get Dad reinstated. She told me that the only way that we could get readmitted was to have a doctor refer us again. I asked her if it had to be the same doctor, because we hadn’t seen the CCH doctors in two months. She checked and called back, saying that any doctor would do.

angelWingsI indulged myself to a mini panic attack, and then I remembered our friend Sue, the nurse practitioner at the dialysis center. It was 8:30 A.M., so I called her cell phone. Not knowing that Sue was a night owl, my phone call woke her. Because I had texted her last night from the hospital, she knew that Dad had been in the emergency room. When I told her about our current situation, she came wide awake and said that she and Dr. Issac would refer us. She said that she could not make the referral, but she could write the order and Dr. Issac would sign it. The referral seemed to move from Sue to the Home Care office at warp speed. In a matter of minutes, Tracy called and said that she would arrive shortly to readmit Dad to Home Care. She arrived a few minutes after 9:00 A.M., just 30 minutes after my call to Sue.

flyingMonkeyFeeling like I could exhale again, I returned to work. Within 20 minutes, the doorbell rang, which was not unusual with all of the deliveries of medical supplies. A couple of minutes later, my mother entered the office and told me that an agent from Adult Protective Services was here to investigate our case. I took a deep breath and went to the family room to meet Brandi. She and I were quickly joined by Mom, Michell, and Dad. With a little assistance from Michell, Dad moved his wheelchair next to my chair. Brandi told us that although charges are made anonymously to APS, we could probably figure out who claimed that we were jeopardizing my father’s well being by removing him from medical care against best medical advice.

Before I responded to the charges, I felt that I needed to establish my credibility as someone who could be entrusted with the care of my father. I told her that I was very familiar with Child Protective Services (CPS), a similar state organization. Not only did I have friends who worked at CPS, but my husband and I had also been licensed by the State of Texas through CPS to adopt and foster children. I then proceeded to respond to the charges by listing all of the stellar medical advice that we had received from Scott & White, beginning in late April, and explained that because of our experiences, we were hesitant to accept medical advice. At the end of my story, which I relayed from copious notes on my iPad, she asked me why we still used the hospital. It seemed that she had also had a bad experience with Scott & White. The truth of the matter is that in central Texas, patients don’t have any decent viable alternatives. For all intents and purposes, Scott & White is the only game in town. At the end of our hour-long meeting, she said that she was closing the case as “an invalid claim.” Before she left, I gave her Sue’s office number so that she could speak with a health care provider who saw Dad on a weekly basis and who knew about the care that we were providing my father. I learned later that she had indeed called Sue before she closed our case.

rainbow1I still hadn’t given dad his second dose of Flagyl. Because I had been concerned that Dad had had a bad reaction to the Flagyl, Dr. Clark had written me a prescription for a different antibiotic. I called Dr. Pfanner’s office and talked with Angie, the nurse, and she said that she would defer any decision about the two antibiotics to the nephrologist. I called Sue again and she urged me to give Dad the Flagyl. She said that Dad was probably dehydrated or was suffering from “dialysis dementia.” She was surprised that we hadn’t seen it earlier. She also said that until Dad was over the CDiff, they would limit the removal to 1,200 ml and then add fluid, which meant that I no longer had to worry about him becoming dehydrated from dialysis.

angelWingsDuring Tracy’s visit earlier this morning, she told me that our aides needed to wear gowns when they cleaned up after Dad. American HomePatient didn’t have any, so I ordered some gowns from a company that I found on the internet, but they wouldn’t arrive for several days. In desperation, I drove to the dialysis center and spoke to Susan, Dad’s dietitian, about my dilemma. I asked her if I could borrow a few gowns and pay them back with new ones when I received my order. She left for a few minutes, and when she returned, she handed me an entire pack and told me that Sue said that we didn’t have to give them any of our gowns. As much as I complained about Scott & White, they did employ a host of angels of mercy.

Michell left this morning shortly after Gale arrived at 10:00 A.M. Before she left, Michell told me that she didn’t know if she would return and that she’d have to pray on it. Not only was she upset by Dad shoving her yesterday afternoon, but the deputy storming the house last night, followed by the investigation this morning, had shaken her up and taken her very much out of her comfort zone. I would do a little praying myself during the next week.

We spent the next hour updating an incredulous Gale about the events of the previous 24 hours. I wrapped up my day of work and finally logged off for the Thanksgiving weekend.

After lunch, I retired to the kitchen to bake some more biscotti. Gale worked with Dad on his exercises prescribed by Janet, the occupational therapist, and Kristen, the speech therapist. Gale also crushed ice for him to swallow.

By 2:30 P.M., Dad was ready for a nap. About an hour later, he was up from his nap, and he was ready for happy hour by 5:00 P.M. Since he had started swallow therapy, he had become a more active participant during happy hour and used this time to swallow ice chips, although he complained of a cold mouth.

rainbow2

What’s next, flying monkeys?

November 24, 2015. Dad and Michell woke up at 4:15 A.M. Dad still had some problems overnight, but I hoped to have him on the road to recovery quickly. I had Michell administer the trach care again this morning. I had to assist her a couple of times, but she was a little less nervous than she had been during her first attempt last night. During the administration of Dad’s morning meds, I added a couple of crushed Imodium tablets. Dad and Michell were able to get ready without much difficulty.

flyingMonkeyKristin, Dr. Pfanner‘s nurse, called to tell me that the doctor had decided on an antibiotic for Dad that would take a couple of weeks to clear up the CDiff. The nurse also provided me with some guidance about laundering and cleaning anything that Dad had come in contact with. She also recommended that we purchase some isolation robes to protect ourselves and encouraged us to wear gloves. I told her that we would abide by her guidelines, but it sure seemed like the horse was already out of the barn. Dad had probably been sick with CDiff for several days. Because prolonged antibiotic use probably contributed to Dad’s CDiff, before hanging up, the nurse encouraged me to contact Dad’s pulmonologist to see if they would change his antibiotic. This was a difficult request. We weren’t going to meet Dad’s pulmonologist for a few weeks. I also thought that it was the infectious diseases doctor at the hospital who had prescribed the doxycycline, and I didn’t know when or if we would see her again.

I thought that the dialysis nurses should know about the diagnosis. I texted Sue, our friend and nurse practitioner at the dialysis center, to let her know that Dad had tested positive for CDiff.

flyingMonkeyWhen Dad and Michell returned home at 12:15 P.M., Dad was in a rush to get to the bathroom. As I was pushing him past the piano, I caught his hand between the wheelchair and the piano and gouged him good. His skin was very fragile and susceptible to tears, so now he was also bleeding. Because I had already helped enough, I left the chaos that I had created and drove to the pharmacy to pick up the antibiotic prescription. I returned around 12:30 P.M. and gave Dad his first dose of Flagyl. When I had a couple of minutes to talk with Michell, she told me that Dad had had 1,100 ml of fluid removed during dialysis. With his weight so low, this news wasn’t good, but at least the quantity wasn’t excessive.

It was Thanksgiving week, and I was working half days, starting at 3:45 A.M., so my day was over by the time that Dad returned from dialysis. Michell, Mom, and I ate lunch, and then I resumed the baking that I had started yesterday.

flyingMonkeyAt 4:00 P.M., Mom tried to wake Dad, but he just grunted at her. He finally responded when she told him that he had his head on his sore hand—the one that I had injured. He then tried to get up by himself to go to the bathroom, which he’s incapable of doing. Michell tried to help him, but he told her to get out of his way. She finally got him into the wheelchair, and he kept telling her (and now me) to get out of his way. Michell kept trying to help him, but he kept shoving her away. She then got him the walker, but he pushed it into me and told me to get out of his way. During the arguing and raised voices, he called me by my mother’s name a couple of times, which I found a little disconcerting. He kept insisting that he could walk by himself. I finally stepped back and told him to walk. It took him about one second to realize that he couldn’t walk, and then he let us help him, although he still didn’t seem like himself.

In addition to the drastic personality change, he woke up looking different and years older than he had just four hours earlier. I checked the printout of precautions and side effects that came with the meds, and a couple of the severe side effects included confusion and irritability. I called Dr. Pfanner’s office and talked to the nurse about his drastic change and our concerns, and she said that she would consult the doctor and call back. When she called a few minutes later, she said that we wouldn’t like the answer, but the doctor wanted us to take him to the ER.

And then it got crazy.

When I called 911, I told them about Dad’s symptoms, and mistakenly used the word aggressive to describe his behavior. The 911 operator then started asking questions about weapons and alcohol and drug abuse, but I assured him that we didn’t have those concerns. Before hanging up, the 911 operator asked whether I felt safe hanging up the phone. I assured him that I did and made a mental note to never use the word aggressive during a call to 911.

flyingMonkeyJust a few minutes later, I heard the sirens, and a black SUV belonging to the sheriff’s department turned into the driveway. The deputy told me that the sheriff’s department is called whenever 911 receives a psych call. I assured him that I had not placed a psych call and that my father did not pose a physical threat to us. While we were talking, the deputy spoke into his shoulder mic and told two other deputies to “stand down.” Moments later the first fireman from Little River-Academy arrived. A couple of minutes later, the ambulance arrived, followed by another Little River-Academy fire truck. The EMTs, deputy, and I chatted on the front porch about Dad’s willingness (or not) to go with them. They asked about Dad’s wife and whether either of us had medical power of attorney, which we both possessed. The entourage of deputies and EMTs followed me into the bedroom, and I was able to talk Dad into going to the hospital. Michell rode in the ambulance with him and Mom and I followed them in my car. We sat in the driveway for what seemed like 10 minutes before the ambulance finally pulled out of the driveway. We finally arrived at the hospital at 6:00 P.M.

EMTs take the patient into the hospital through a designated door, separate from any visitors, including those who ride in the ambulance. I parked the car and Mom and I met Michell in the waiting room. While Michell left us to find a restroom, Dad, Mom, and I were ushered into an exam room. When the nurse arrived, I told her about the events of the day. When the resident, Dr. Stephanie Katrin Clark, arrived, said that Dad’s mentation problems could be from the CDiff and not the meds. She then ordered a chest x-ray to see if the lack of lung capacity was causing his confusion. She also ordered an EKG. Finally, the nurse arrived to take Dad’s blood. It was then that we learned that the reason why Dad’s ambulance stayed in the driveway so long was that the EMT was starting an IV. Having an IV in place simplified the nurse’s task, and she quickly acquired the necessary samples and turned them in to the lab shortly before 7:50 P.M. Before the nurse left the room, she started Dad on a saline drip.

At 7:49 P.M., I texted Sue to inform her that Dad had had 1,100 ml removed this morning and that he was now in the ER getting 500 ml of saline. I didn’t know if she could provide us with any information that might help our situation.

flyingMonkeyA little over an hour later, Dr. Clark returned to the exam room and said that she wanted to admit Dad. She said that his blood pressure was soft and he seemed dehydrated. I told her that we had to be home tomorrow for his 60-day home-care assessment. She said that she would give him another 250 ml of saline to improve his blood pressure. The next thing I knew, a tech arrived and said that she was to take Dad to radiology for a CT scan. I told her that it was our understanding that Dad could leave after he had received the 750 ml of saline and that I didn’t want him to have a CT scan. I also told her that he was out of Medicare days (and S&W Senior Care days), so admitting him was out of the question. After the tech had left the room, I explained to Dad and Mom that Dr. Smith had told me that Dad’s CT scan in August had not been normal, but he had then added that the CT scan of someone his age wasn’t normal anyway. I didn’t trust this doctor to say that the results of a CT scan weren’t normal, which would be another reason to admit him.

Shortly after the radiology tech left the room, we heard a knock on the door and a woman entered, identifying herself as the social worker and a problem solver. I again explained why we had to go home. My argument didn’t seem to sway her, so I told her that Dad was uninsured and that unless she could pay his hospital bill, I wasn’t interested in anything that she had to say. She left the room and returned a couple of minutes later with Dr. Clark and with the charge nurse. The doctor then informed me that Dad had suffered a heart attack. Today would mark the second time since July 22 that I had heard this, and I suspected that she was no more correct than the previous doctor had been. When I pressed her for details, she said that his numbers were elevated so that he might have suffered a heart attack. She also said that his kidney function was very high and that according to his medical history, he was very sick. I explained that his kidneys were in terrible shape and that he was ERSD and on dialysis. One of our problems was that the Scott & White Home Care department was not on the same records program as the hospitals, so the latest information accessible to the medical staff at Memorial was from September 29, some 57 days ago.

flyingMonkeyThe social worker and charge nurse explained to us that to take Dad home, we would have to sign an AMA, which would ensure that he could not be recertified. They had effectively trapped us into a no-win situation. We didn’t trust them or the hospital, and even if we did, Dad was uninsured, and we had to get out of there. I told them that I wanted to make some phone calls. I called the Home Health after-hours phone number and told them about our situation. I was transferred to Leo, the night nurse who had originally admitted Dad into home care. My phone died, and when I used Mom’s phone, Leo and I kept getting disconnected. When the nurse returned to the exam room, we told her that we would sign the AMA so that we could take Dad home.

At 10:38 P.M., I texted Sue again and told her that Dad had been dehydrated and that we might need to rethink the amount of fluid we’re pulling off of him, especially when he has diarrhea. At the rate that he was receiving fluids at the hospital, it wouldn’t be long before they replaced everything that had been removed during dialysis.

Eventually, the nurse came back, and my mother told her that we were ready to leave. After we signed the AMA, the nurse removed the IV lines and called for an ambulance to transport Dad home. About 30 minutes later, the EMTs arrived with a gurney. Mom and I recognized both of the EMTs. One of them had been by the house several times and the other, a woman, had brought him home from dialysis earlier today. When the EMTs took Dad to the ambulance, Mom and I passed through the waiting room, where we found Michell, who had been waiting patiently for almost five hours. Michell quickly left the waiting room and joined Dad for the return ride home in the ambulance. Fortunately, we had been able to text with Michell, so she had some idea of what was happening.

The four of us finally arrived home around 11:15 P.M. I started cleaning up in the kitchen and toasted the biscotti that I had baked earlier. We were hungry and too wired to sleep, so Mom also prepared a plate of cheese and crackers. Michell was with Dad in the bedroom. The poor guy was suffering from CDiff and had been trapped in the ER for more than five hours.

flyingMonkeyAt 11:45 P.M, we heard a loud pounding at the door. I peeked around the corner to see if I could tell who was at the door and was momentarily relieved when I saw the uniform of a sheriff’s deputy. When I opened the door, I met Deputy Ryan Blankemeier. He said that his department had received a call that we had taken Dad home from the hospital too soon and he was here to ensure that my father was OK. Deputy Blankemeier looked pretty confused when I told him that it was the nurse at the hospital who called for the ambulance to transport Dad home.

I told the deputy that Dad was on the commode and that he would have to wait until Dad was decent. From where we were standing in the hall, the deputy could hear Dad and Michell talking. After a while, the deputy said that he felt like he could leave, but I insisted that he stay. Eventually, Dad was decent, and I escorted the deputy to the bathroom to see him. I told Dad that the deputy wanted to ensure that he had gotten home OK. He said that “she” got home OK. I told Dad that it was him that the deputy cared about, and Dad said that he was fine, but it was “touch and go there for a while.” Dad laughed, and the deputy smiled. I eventually escorted the deputy to the front door shortly after midnight.

It was well after midnight before Dad was in bed and approaching 2:00 A.M. before I got to bed.

I hadn’t realized how upset Michell had been about the day. I had mentioned in an earlier post that she was astonished when I openly disagreed with a doctor. To sign an AMA and bring Dad home, followed by the visit from the sheriff’s department, was just a bit too much for her. After Dad had gone to sleep, she called a friend and cried about the day and then cried herself to sleep. At this point, she wasn’t sure if she would return next week and would have to pray for guidance. I hoped that she said a prayer or two for all of us.